Posts Tagged ‘independence’

Relationships and Independence

March 14, 2010

From what the poll is telling me that I put out there the biggest topics that you all want to see me write about are relationships and independence. I am excited to see where this is going to go because relationships could go several different ways,  I could talk about what its like to have my first boyfriend at the age of 39. Or I could talk about my female friends and how they stick by me during difficult times in my life.  Also the independence thing is going to be interesting because I don’t feel that I am as independent as I should be at the age of 39, but when people say you still live at home..I am like yeah I do. I am very content living at home my parents and I get along really well they give me my space when I need it. We like being together as a family but we also like our alone times. I consider having my car my independence. They also love my boyfriend and are very happy for the two of us.  I also would like to find out if you all would like for me to go in the direction of what its like to travel as a disabled person? I am in the process of saving my money to take some online classes to be a home based travel agent. I have worked in the travel industry before moving overseas and I wanted to get back into it when we moved back here but job opportunities were just not there, so I decided to go the route of building my clientele and starting my own small business. My boyfriend as I have mentioned before is into Internet Marketing, make sure you check out his websites they are on the side of my blog. He really is excited about his work and very passionate about it.

I know I started this post about relationship and independence..and it just went into several directions sorry about that..sometimes that is how my brain works..major spaghetting..for those of you that know the book Men are like Waffles and Woman are like Spaghetti..great book.

Hope you all have a great week. Let me know how you are all doing this week.



February 9, 2010

Good Morning!

Hope all my readers/friends are doing well this morning. Some of you may be bracing for another snow storm. I know where my boyfriend lives he had over 2 feet snow and they are expecting more in the next 24-48 hours.

Ok on to the reason for this post…Awhile back I had recieved an email from the SBAA stating that they were looking for people who have/had done some volunteering. So I wrote the person back and said that I would very much like to be part of this story. I recieved an email response and then set up a time to talk to a gal from SBAA. She then set up an interview with the gal who was doing the story for an interview. I had that last night. The story from what I understand will be in the Insight Magazine that is put out by SBAA, sometime in March/April. Again this is a great way for those of us adults with Spina Bifida to get the word out there and be able to encourage our teens and other adults that yes we can volunteer also does not matter if we have a disablity or not. I wanted to just quickly share that news with you all. I will if I can post the article online once I see it. I was told that once she writes it up and sends it in that I will be given a copy before it goes to print. This magazine is just another resource that I hope you all are able to take advantage of.


January 29, 2010

I wanted to maybe explain why I am so hyped on independence.

I have a feeling that most of my readers are young parents and I don’t want to discourage you that is not my intent for this blog.  I want to encourage you, I know that there are many levels of SB, I happen to be on the higher end of having Level L-4-5 also shunted. I feel as we grow up its up to the parents to help us become independent.  Some of us will not be able to do something that someone else might be able to do.  I have a friend who also has SB and for instance she is not able to do stuff that I am able to do. I feel that its all because of the way she was brought up. I was brought up to try everything and it might take me twice as long to do something but that is just away of life. Her parents would see her struggle and do it for her, so needless to say she is now living in a home for disabled people to have someone take care of her. Do I think if her parents had allowed her to try and do stuff her self could she live on her own? Oh yes.

I am struggling with things to write about because I just have lived with SB and never thought about it before, but when my boyfriend asked me to try blogging to help others I said I would give it a try.

I hope that what I am writing about is some what of a help to those out there. I want to reach you all where you are. I want to reach also extended family members even if you have other children that are older and need someone to talk to and ask question to I am here.

I may not get back to you during the week. I recently started a parttime job and that is taking all energy out of me during the week. I am going to work on blogging on the weekends.

If you are in the part of the states that is experiencing bad weather this weekend please stay safe.

Where have I been?

January 26, 2010

Dear Readers

I am so sorry that I have been away from blogging/writing this last week. There really is no excuse.  I have started a part time job as a receptionist and that has pretty much taken most of my free time.  I am going to try and do much better at getting on here and atleast answering your questions in short little blogs.

Someone asked me about my braces? I use what they call KAFO’s.  I never knew the actual term until I was a bit older I just knew that they came up to my thighs. I used to use when I was little HKAFO’s. But since I have hip action as they called it, I am able to use the KAFO’s.

Please keep the questions coming and I will like I said answer them in shorter blogs and try and do that every other day if not daily.

Thanks for taking the time to check out my blog. I love being able to help those of you that have little ones just starting out.

Oh and if they start to pull up on things..yes that means they want to get up right and you need to check into bracing if they need it.  Yes braces are cumbersome but its a great way for your child to be independent,  yes they may be uncomfortable in the beginning but if you work with your child little by little they will be able to wear them all day. I put mine on at 730 am and I am not out of them til 11pm at night when i got to bed. Great way to be independent if your child is able to walk. I know there will be cases were kids can’t walk and the wheelchair is the only way to help them be independent and that is ok too. Just making sure you child can be as independent as possible is the key.

Why use crutches?

January 8, 2010

Why use crutches?  Good question huh?  Well for me the reason I use them is for independence.  Since I was born as you know with a disability, I am not able to walk without them, so they make me independent. If i did not use them I would be in a wheelchair. So thanks to great parents and therapist I learned how to walk with crutches at the age of 18 months. Was it hard work yes it was. Do I remember the beginning not really. I started on what they call underarm or axillary crutches. I used those type until I was around the age of 11.  Then learned how to use what are called forearm crutches and continue to use those to this day. There are a few places out there that you can find that you can get custom made crutches if you are done growing and want something that looks little more grownup. I won’t give you any names or places to go in this post just know that they are out there and you can google and find them. I have a great pair that is custom fit for me and have been using them for over 10 years. They are light weight and made of titanium.

There are other reasons people use crutches, because of injuries, maybe you had surgery?

There are proper ways to use them I will discuss that briefly here today, the best way for you to learn how to use them is to contact a physical therapist or someone who is trained in teaching people how to use crutches.

One of the first things is to make sure the crutches have a perfect fit for you. If they don’t then it will be very difficult to get around and even could cause more injury or damage then actually helping you.

Some other additional things that you need to be aware of are with the underarm crutches the crutch should come with in 2-3  fingers of your armpit, make sure you are not leaning on them cause that will cause more damage to your nerves in your arms and you will then have more problems then just a leg/foot injury. You should be able to extend your arm down and your elbow should  be able to rest at about a 30 degree angle.

For the forearm crutches you should be able to flex your elbow between 15 and 30 degrees and the crutch tip should come within 6 inches of your foot. crutch cuff should come with in approximately 2.5-4 cm below your elbow.

There that should get you started. I want to in future post talk about how to walk with crutches. Also make sure you get a good pair of crutch tips that is very important because the wrong tips can and do cause problems, cause you to fall, slip and not feel confident in walking. As we know confidence is what is important for those of us that walk with crutches, cause there is plenty of things that can cause us to fall. I will talk about that in future post also…stay tuned for more ways to be independent.

Wheelchairs..are not just for getting around

January 8, 2010

Types of Wheelchairs:

When you think of wheelchairs your first impression is probably hospitals and institutions right? That would be mine but wheelchairs have come along way over the years.  There are so many different varieties of chairs out there, manual chairs, electric chairs, scooters. What I am not going to do is tell you which one is better from the other. I just want to inform people that there are so many ways of those of us that are disabled to be more active and not have to sit at home.

The first one that I am going to talk about is a manual wheelchair or what might be referred to as a self propelled chair and the reason that is because you have to manual push the chair yourself by using hand rails that are attached to the wheels of the chair, this chair is good for someone that has good upper body strength and can push themselves. Over the years the chairs have been made from  lighter weight materials those in turn help those of us that have upper body strength to be more active.

Then there is what I call the electric chair, a bit if history that I was not aware of until researching this article is that the electric chair or power chair was developed for men coming home from World War 2 because of injuries that occurred  they would require a powered chair, the chair is controlled by a joy stick device attached  on the armrest.

I think I am going to leave you all with those two options for wheelchairs for now. I have come up with some other topics to futher our discussion on mobility and would like to start researching that here in the next day or so. Want to look into different kinds of crutches, braces, maybe even walkers. I hope that you all have enjoyed this post and I look forward to posting more in the near future.