Posts Tagged ‘struggles’

Thank you

January 17, 2010

I wanted to first thank all my new followers (guess that is what you call you all)? I was and still am in shock of all the hits I had this morning and last night.

I want to be an encouragement to each and everyone one of you.  Some have asked me to talk about my struggles of what its like to live with SB.

Let me give you quick background. I was born with the most severe form at L4-5. I walk with braces and crutches. I don’t have bladder or bowel issues. Have always been able to go the bathroom on my own. Yeah I go more then the average person but its just a way of life and my parents and I just have learned to live with it. My boyfriend also has learned that as he says “its just the way I am wired”.

Is having SB a struggle oh yes its a struggle but I was brought up in a home that allowed me to try anything that I wanted too.  I learned  how to drive a car at the age of 19 out of necessity  to get me back and forth to work. I graduated from high school at the age of 18,  I was in classes for people with LD issues, back when you were in a classroom with all students from the ones who did not care about school to those like me with LD issues. It was a struggle but I did really well, I could have done well in the regular classroom if I had support like they do now a days.

I love sports so I tired several sports for winter I learned how to snow ski, in the summer I was involved in a disabled rowing/sculling team.

I did not have many friends through my life but there are a few that have stuck by me.  I recently at the age of 39 have my first boyfriend.  He is so awesome.  Some people think its weird to search for your spouse over the internet but I have to say it was the best thing that happen to me.  No he is not my spouse “yet” but we are taking it slow. We were matched 3.5 yrs ago. Met in person for the first time in October 2009. We instantly clicked, we get along so well. What Email and IM allowed us to do is to get to know each other on a deeper level before actually meeting face to face..now you probably are wondering why I mentioned this? Its because this is a struggle that I have had all my adult life. Guys were just not that interested in me. When my boyfriend and I finally did meet we spend the entire day together he came to NC to visit me. He saw the struggles that I deal with all day long. I struggled at times with steps and he felt helpless..his words. He did not know what to do. I told him in the beginning that my life is full of struggles and that I adapt. I also told him that if I need help I will not be afraid to ask for it.

This is where I think most parents of older children need to allow your kids to explore and try and do things for themselves..yes it will be tough to watch them struggle but you need to allow them to struggle so that when you are not around, they will be able to figure out how to do stuff.

I am not sure I answered any ones questions today. I have to really start to think about how I do things and get those down on paper.  So that I can share the struggles and accomplishments with everyone. Please feel free to comment and ask questions I want to make this as open and positive as possible..I was talking to my boyfriend and tell him about what I wanted to accomplish here and he is so excited for me.

Blessings everyone have a great week

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